Thursday 3 September 2009

Allergic to milk & wheat

Well!! I went to see the dietician at the hospital yesterday. While I was there in the waiting room, I saw the allergy specialist walking past. I smiled at him, and he smiled back, looking rather confused...he walked past again, and I smiled again, and he gave me the same confused look. I then heard him ask the receptionist where his patient was and she said the patient couldn't make it. I took this as an opportunity so the next time he walked past, I said "hi, I'm Alfie Baines' mum, I was wondering if you had his test results back yet--save you a phonecall"...so off he went to check...

Anyway, while he was gone, the dietician came and collected me, and we started chatting...then I saw Dr Macdougall (the allergy man) looking for me outside through the glass panel in the door. He knocked and came in, and the dietician got the results up. They were for cow's milk and beef. Apparently the beef one was slightly over but they said the best thing would just be to try him on it anyway...the milk, however, was a very high score. They said anything over zero is an allergy, and Alfie's result was 4000!!! haha...he doesn't do things by half!

However, this did leave me wanting to write to the A&E department. When we gave him the formula milk, and he had the reaction, we called an ambulance (as they told us to when he had the anaphylactic reaction) and they assessed Alfie and took him straight in...but the people in casualty were just plain RUDE. There were two young people in there who were obviously quite drunk and rowdy, but the doctors and nurses just had NO time for us at all. They didn't seem to realise how scary it was for us from last time, even though some of them had been there at his first reaction. But I think that's why. It just wasn't a big enough reaction. The last time I saw the allergy man, he went over this A&E trip, and he said "well you said there was a rash, but the doctors in A&E said they didn't notice one, so it must have gone down by then." NO. The rash didn't appear until about 20 minutes after we got to A&E, but the doctors were literally popping in for a second to check Alfie's temperature, and not taking any notice of our worries. But hey. I just want them to know that our worries weren't unfounded, and he is actually VERY allergic. Grrr. They made me feel so silly at the time.

Aaaaaaaaanyway, we got a load of diet sheets, there is just SO much he can't eat. Basically there are some 'free-from' foods that he may be able to have, but the best thing is for us to make everything fresh from scratch ourselves. It's gonna be hard for a while, but I assume once we've got into a routine, it will be easier =O)

Right...I must go now...take care all xx

*****edit*****

Oh my god, I forgot to add. I went swimming with my friend Lucy last night, and while I was out, Mark gave Alfie his soya milk and put him to bed. When I came back, Alfie was all tucked up. It was only about 20 minutes after his bed time, and usually Mark would have waited for me, but he did it all without me. It made me so sad. I felt like crying. Like they didn't need me anymore. Like if I disappear, they won't need me...sad =O(

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